On June 12, the new board of the German Children’s Hospitality Association was elected by an overwhelming majority, which with its wide range of experience and competencies will support families with children with deadly diseases over the next two years.
For more than 30 years, the German Children’s Hospice Association (DKHK eV), which is founded by affected families, has worked to improve the living conditions of terminally ill young people and their families. “The German Children’s Hospice Association is the most important nationwide institution in the field of child hospice work. Here is an incredible potential that I would like to consolidate and promote with my work“, said Peer Gent, management and board member of the Sternenbrücke Children’s Hospice Foundation, which was newly elected to the voluntary board along with three other board candidates.
As a co-founder of Hamburg Children’s Hospice, Peer Gent has more than 20 years of expertise. He is very happy that he can now run a nationwide campaign for the interests of child hospice work. His knowledge and experience have previously made a significant contribution to the uncertain and insufficient funding of the first years of child hospice work in Germany based on the newly created law on hospice and palliative care at the health and nursing funds at. federal level, a framework agreement for inpatient child hospices negotiate and provide the now 17 stationary child hospices a reliable framework for action. .
With their vast and diverse experience and competencies, which all five board members have gathered in their many years of caring for affected families, a new common path must be paved – a path with and for affected families, always oriented to their concerns and needs. The new DKHK eV board has therefore focused on a sustainable provision of support for affected families, on ensuring the requirement for child hospice work, based on the association’s roots and on creating a clear, efficient and safe framework for full-time and volunteers. employees of the German Children’s Hospitals Association agree as central common goals.
Despite the currently difficult and uncertain times and the associated loss of donations, which is crucial for the hospice work, the board is optimistic. Together, they will set a new course, define clear content orientations, exploit the potential and make the difficult lives of the affected families even more visible.
To the Sternenbrücke children’s hospice
Since 2003, the Sternenbrücke Children’s Hospital has helped children, young people and, since 2010, young adults up to the age of 27 with a limited life to live a dignified life until their death. The sick young people and their relatives are cared for not only in the last phase of life, but also during the course of the disease, which often lasts for many years. Families can be admitted to the children’s hospice for at least 28 days a year as part of relief to gain strength and rest for the difficult road. A multi-professional team is on site in Hamburg Children’s Hospital to professionally accompany and lovingly care for the sick young people and their relatives – to alleviate their feelings of loneliness and isolation and thus relieve them mentally and physically. Even after the loss, Sternenbrücke continues to carefully support the families in their grief.
It depends on your help
In order to be able to help all affected families – regardless of their financial situation – Sternenbrücke is dependent on donations every year, as only part of the costs of caring for the sick young people and accompanying their relatives are covered by health and care. care insurance companies.
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Original content from: Children’s Hospice Sternenbrücke, broadcast by news aktuell